Why would anyone seek to know what’s wrong with their kid? Why would you activly look for a diagnosis. These are questions some have posed to me through Direct Messages on Social Media.
A diagnosis is a dreary term. The new thought tends to be to merely treat symptoms, but not to label. For some of us, parents and caregivers, we didn’t have much choice.
This post is to further explain why someone would seek a diagnosis. You can read the first part Here: Why Label Kids?.
Experts weren’t sure what to think of my kids. One HUGE reason we went for a diagnosis is even BCBA’s weren’t sure what was happening, speech therapist’s suspected mini strokes, teacher’s weren’t sure what path to be given, etc. It was at these crossroads of cloudiness that we were urged to seek other’s opinions.
The other troubling spot here, is that many of the professionals did not agree with other experts opinions or diagnosis. This led us to seek harder for congruent answers. Remember in autism, we search until all the pieces fit.
Our kids were dangers to themselves. This was by far the scariest. My kids look 100% normal (for the most part).
However, they had such terrible SIBS, lack of receptive language, auditory processing problems, and severe repetitive behaviors that as a mom, I knew something was WRONG!
Not one of us has the goal for child protection agencies to be called on us. No one wakes up hoping their eight year old is arrested (I hope not).
Thus, I knew we had to do something. Baby proofing was nothing to my youngest. She could easily open doors with the knob protectors like a stealth ninja. I needed UBER help keeping her safe from herself.
When our kids are dangers to themselves and others, we need help. Help often comes with a diagnosis, which I stated in the First Part to this post.
The last HUGE reason it gave me a relief to know what was happening was to answer questions about my kids. You don’t know the comfort I felt when professionals could state, the reason your child does “XYZ,” is due to the fact “XYZ.”
Knowing my child belonged with a bunch of other kid’s who acted similarly was a giant relief! My kid is not the only one obsessed with watching doors open and close (Thank you Temple Grandin Movie!).
Also, for times my son would scream throughout a store, it was nice to know that was his “Autism” coming out. For times my kid’s get stuck in repetitive behaviors in public, it is great to be able to say to other children, “He has autism, give him a minute please.”
The conundrum with getting a diagnosis is this: Where does the diagnosis end, and my kid just being a complete “Beevis” begin? I wonder this several times a day.
Sometimes, their facial expression gives it away. Other times, I can sense it is how they are seeking attention (repetitive behaviors, screaming out, etc.). But then the conundrum: “Isn’t that part of Autism?”
This has been a battle that ABA Therapist’s and I have gone round the block on. Honestly, I don’t think anyone has the answers 100% of the time.
We all do the best we can. How about you? Did getting a diagnosis open up more questions? If so what are they? Also, how did getting a diagnosis help you?
On the other hand, if you don’t have a labeled child but there are symptoms occurring, how do you cope? What is your “game plan?” I’d love to hear. Please comment below.
Thank you for stopping by today. Please come again soon. In the mean time, blessings to you, today and always,
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