Birthed for Greatness
May 24, 2016
Sow and Reap – Karma
May 27, 2016

Resources to Help Those Who Need Extra Help

Resources for families with special needs

special family

Resources!!  I just started this project, if I missed any diagnosis, please inform me.  I apologize!  Every diagnosis is equally important.  This is an Ever Growing/Living List.  Please add your own knowledge, therapies, or even strategies that have helped you in the comments and I will add them in the list.  Thank you!

The best way to utilize this list is to copy and paste the links into your browser.  If I have a spare moment – ha!  I’ll make real links of all these, so all anyone has to do is click the links.  I apologize that I didn’t get that far… baby steps in the house!

DISCRETION ADVISED: ****I do NOT warrant any of the below resources as tell all cures.  I have used some of these resources and will “blog” about them.  Not one therapy will cause a child to respond the exact same way.  All responses to therapies and treatments differ as all children and individuals differ.  Please do NOT try a ton of these at the same time.  Trust me, it causes chaos.  Remember: special needs life is a marathon, not a sprint.  Caregiver: pace yourself in many ways – financially, physically, and consider your health and schedule too.  

I wanted a list like this to help the scared/bewildered caregiver that knows something isn’t right and needed some sort of list to help them navigate the road.

I sure hope this helps.  You got this!  You are strong.  No one can love your special loved one like you!  WE GOT THIS, TOGETHER =)

 

 

Recently Diagnosed with Autism:

Home

https://www.autismspeaks.org/

http://www.cdc.gov/ncbddd/autism/links.html

http://www.generationrescue.org/

For Families

http://www.hollyrod.org/

http://www.homecity.com/creating-a-home-where-your-child-can-thrive-with-a-disability#Autistic

http://www.nationalautismresources.com/

http://www.operationautismonline.org/ (for military families effected by autism).

http://autism.sesamestreet.org/

https://www.myautismteam.com/

Home

https://www.autism.com/

Diets:

http://feingold.org/ (feingold diet)

http://www.gfcfdiet.com/

http://www.webmd.com/diet/a-z/paleo-diet

http://www.grainfreeliving.com/  (grain free diet)

What Is Clean Eating?

http://charliefoundation.org/ketogenic-therapy/therapies-2/autism (adkins diet for treating autism)

Inspiration and Hope for Many Special Needs:

https://funandfunction.com/

http://www.friendshipcircle.org/blog/

Ministries:

http://www.joniandfriends.org/

http://www.keyministry.org/

https://www.mcleanbible.org/access/resources-pastors-parents-and-childrens-ministry-workers

http://mintools.com/special-needs-ministry-resources.htm

 

Eating Disorders:

http://www.eatingdisorderhope.com/

http://www.apa.org/helpcenter/eating.aspx

http://www.nationaleatingdisorders.org/find-help-support

(Very close to my family’s heart).

 

Reading Intervention:

http://www.childrensdyslexiacenter.org/about – free multi-sensory reading program by the Mason’s

http://www.starfall.com/

http://www.lexialearning.com/

https://www.readinga-z.com/intervention/

https://www.raz-kids.com/main/Search/?searchTerms=login

Home

https://www.orton-gillingham.com/

http://dyslexiahelp.umich.edu/answers/independent-schools

 

Math Help:

http://www.mathusee.com/

http://www.bigbrainz.com/index.php

http://www.itecnz.co.nz/symphony-math-student-program.html

https://www.sumdog.com/

https://www.ixl.com/

https://buzzmath.com

 

Just For Fun (Learning with lots of fun):

https://www.brainpop.com/

https://www.roblox.com/NewLogin

http://www.lego.com/en-us/default.aspx

http://pbskids.org/

http://www.animalplanet.com/

http://www.nickjr.com/

http://www.seussville.com/

http://disneyjunior.disney.com/

http://www.bbckids.ca/

http://edhelper.com/

http://www.lumosity.com/ (more teen/adult oriented)

http://www.getreadytoread.org/

http://mathandreadinghelp.org/

http://www.familyeducation.com/ (Mecca of resources)

 

Visual Motor:

http://therapystreetforkids.com/EyeHandCoord.html

https://www.sensorysmarts.com/helpful_websites.html (Lots of sensory, OT (Occupational Therapy Related web sites)

http://www.eyecanlearn.com/

 

Visual Spatial:

http://www.visualspatial.org/

 

Selective Mutism Disorder:

https://www.verywell.com/what-is-selective-mutism-3024702

Teacher’s thought Mattey had this before the autism diagnosis.

Selective Mutism Symptoms

 

Oppositional Defiant Disorder:

http://www.mayoclinic.org/diseases-conditions/oppositional-defiant-disorder/basics/definition/con-20024559

http://www.aacap.org/AACAP/Families_and_Youth/Facts_for_Families/FFF-Guide/Children-With-Oppositional-Defiant-Disorder-072.aspx

Some therapists think Sophie, my youngest has ODD, with anxiety, social delays, coordination delay, and learning challenges.

https://www.nlm.nih.gov/medlineplus/ency/article/001537.htm

 

Disruptive Behavior Disorder:

https://healthychildren.org/English/health-issues/conditions/emotional-problems/Pages/Disruptive-Behavior-Disorders.aspx

Disruptive Attitude NOS

(This is Sophie’s current diagnosis after being taken off the autism spectrum).

 

 

Severe Behavior Therapies:

https://www.kennedykrieger.org/patient-care/diagnoses-disorders/behavioral-disordersself-injurious-behavior

http://www.marcus.org/Clinical-Services/Behavior

https://www.rush.edu/health-wellness/autism-resource-center/child-adolescent-services/treatment/inpatient-and-intensive

 

Speech Therapy:

Home

Lindamood Phoneme Sequencing® Program for Reading, Spelling, and Speech (LiPS®)

 

Attention Deficit Disorder :

http://addresources.org/

http://www.chadd.org/

http://www.aacap.org/AACAP/Families_and_Youth/Resource_Centers/ADHD_Resource_Center/Home.aspx

http://www.add.org/

 

ADHD (Attention Deficit Hyper Active Disorder):

http://www.nimh.nih.gov/health/topics/attention-deficit-hyperactivity-disorder-adhd/index.shtml

http://www.cdc.gov/ncbddd/adhd/materials.html

 

Sensory: (Occupational Therapy Resources)

https://www.sensorysmarts.com/helpful_websites.html

Reduce the ‘Noise’

http://sensorycraver.com/

http://www.sensoryedge.com/

http://www.sensorykidstore.com/

https://funandfunction.com/

http://www.pfot.com/

https://www.southpaw.com/

http://www.spdparentzone.org/ (Sensory Processing Parents’ site)

 

Dyslexia:

http://www.ncld.org/

http://www.executiveclasstravelers.com/1/overcoming-learning-disabilities.htm

Support and Resources for Educators

http://www.dyslexia.com/library/silver1.htm

http://www.loc.gov/nls/ (library for blind and disabled)

http://www.afb.org/info/living-with-vision-loss/reading-and-writing/talking-books-933/235 (talking books)

 

Apraxia:

http://www.apraxia-kids.org/

 

College Choices for Those With Disabilities:

http://www.accreditedschoolsonline.org/resources/best-accredited-colleges-schools-for-students-with-disabilities/

http://www.ncaa.org/health-and-safety/sport-science-institute/supporting-student-athletes-type-1-diabetes (scholarships, advice for Type1 diabetics)

http://www.affordablecollegesonline.org/college-resource-center/affordable-colleges-for-students-with-disabilities/

Overview of College Resources for Students with Disabilities

 

 

 

 

Cerebral Palsy Guide:

Home

 

Early Intervention:

http://www.firstsigns.org/

https://www.zerotothree.org/

http://www.sense-ablebaby.com/Home_Page.html

http://www.devdelay.org/

http://www.parentcenterhub.org/repository/dd/ (great resource with lots of options and financial end is covered)

 

Speech Related:

http://www.cherab.org/

http://www.speechville.com/

 

Apraxia:

How To Help

http://www.asha.org/public/speech/disorders/ChildhoodApraxia/

http://www.apraxiaspeaks.com/

http://www.webmd.com/brain/apraxia-symptoms-causes-tests-treatments

 

ALL Things ASD (Autism Spectrum Disorder):

Noteworthy Sites on Asperger’s and the Autism Spectrum

http://aspergers101.com/

http://asperkids.com/

http://www.aane.org/aane_services/aane_online_support_groups.html

http://www.autismweb.com/floortime.htm (an early intervention therapy for autism)

http://www.icdl.com/dir/ (another floortime site)

http://autismnow.org/blog/

 

Parent Support and Communities:

http://www.spdparentzone.org/

http://www.cpsconnection.com/

http://www.comeunity.com/disability/

http://www.spdfoundation.net/

https://groups.yahoo.com/neo (I belong to some for rare chromosomal abnormalities).

 

Special Education Rights:

http://www.wrightslaw.com/

http://www.fape.org.ph/

http://www.washington.edu/doit/accommodation-resources-autism-spectrum-disordersasperger-syndrome

https://www.iidc.indiana.edu/?pageId=601

 

 

Uncatagorzied Resources:

http://www.childrensdisabilities.info/

http://www.tripbuzz.com/wheelchair-accessible-travel-guide/

https://www.disability.gov/

https://www.aclu.org/issues/disability-rights

https://www.hrw.org/topic/disability-rights

http://publications.usa.gov/USAPubs.php?PubID=5533

http://www.ada.gov/cguide.htm

http://www.handicap-international.us/disability_rights

http://www.nchpad.org/

https://www.braintrauma.org/

Work Opportunities:

https://uniquechamberofcommerce.com/

 

 

Leisure (Camps, Sports, and Recreation):

https://www.semel.ucla.edu/nadc

https://donate.specialolympics.org/

https://www.facebook.com/specialolympicsusa

http://www.easterseals.com/

http://www.teensummercamps.com/

https://www.gallaudet.edu/clerc-center/info-to-go/national-resources-and-directories/summer-camps.html (for deaf and hard of hearing).

http://www.mysummercamps.com/ (Thank God is doesn’t say my summer cramps)!!

https://www.nps.gov/aboutus/accessibility.htm (nationals parks accessible for everyone).

http://sath.org/ – Accessible travel site

http://www.blazesports.org/ (Sports for all) =)

http://www.americanspecialhockey.org/

Click this image and help us win $50,000 from Gatorade for youth adaptive sports!

http://icanshine.org/ – Specialized bikes

http://www.miracleleague.com/

http://healthfinder.gov/FindServices/Organizations/Organization.aspx?code=HR3425

http://www.disabledsportsusa.org/sled-hockey/

http://www.pathintl.org/

http://www.specialneeds.com/children-and-parents/general-special-needs/why-martial-arts-are-best-special-needs

http://www.allstarma.com/special-needs/

 

 

Epilepsy:

http://www.epilepsy.com/

https://www.epilepsysociety.org.uk/help-and-support#.Vyi25vkrLIU

http://livingwellwithepilepsy.com/

 

Muscular Dystrophy:

https://www.mda.org/

http://www.ninds.nih.gov/find_people/voluntary_orgs/volorg160.htm

 

Tourette’s Syndrome:

http://tourette.org/

http://www.cdc.gov/ncbddd/tourette/families.html

http://www.mdjunction.com/tourette-syndrome (Family support site)

http://www.dailystrength.org/c/Tourette-Syndrome-Tic-Disorders/support-group

http://ts-stories.org/

 

Medical Alert IDs:

http://www.roadid.com/

https://www.stickyj.com/

 

Places Online for Children With Disabilities:

http://www.chop.edu/health-resources/starbright-world#.Vyi5V_krLIU (an online community for teens 13-20, who have serious medical conditions or their siblings).

http://wrongplanet.net/ (For teens with aspergers.  I’m not in love with the name).

http://www.aspergerresourcesonline.com.au/

Alzheimer’s Resources:

http://www.alz.org/

http://www.helpguide.org/articles/alzheimers-dementia/dementia-and-alzheimers-care.htm

 

Financial Assistance:

https://www.autismspeaks.org/family-services/grants

http://www.autismsupportnetwork.com/resources/autism-grants-united-states

https://www.verywell.com/grants-for-families-living-with-autism-260283

http://www.nlmfoundation.org/grants.aspx

http://thefounderscenter.org/autism-grant/

http://www.nimh.nih.gov/news/science-news/2014/new-grants-fund-cross-lifespan-services-research-for-autism-spectrum-disorder.shtml

http://www.riseforautism.com/grants.html

https://sfari.org/funding/grants

http://www.practicalmoneyskills.com/personalfinance/experts/practicalmoneymatters/columns_2010/0326_specialNeeds.php

http://www.huffingtonpost.com/jason-alderman/finding-financial-aid-for_b_520385.html

https://www.justgreatlawyers.com/estate-planning-for-parents-of-children-with-autism

Disability.gov’s Guide to Student Financial Aid

Family

http://personnelcenter.org/aid.cfm

http://www2.ed.gov/

iPad mini giveaway

https://www.grantwatch.com/cat/33/special-education-grants.html

How to get School Grants for Special Ed / Needs Children?

http://education.ohio.gov/Topics/Other-Resources/Scholarships/Special-Needs-Scholarship (Ohio specific).

https://www.gofundme.com/ (create an account for anything – who knows?!?

https://www.caringbridge.org/

http://mchb.hrsa.gov/programs/traumaticbraininjury/statefactsheets.html (grants for brain trauma).

 

 

Special Therapies:

http://abcnews.go.com/Health/AutismNews/story?id=7070353&page=1 (Hyper baric oxygen therapy).

http://www.generationrescue.org/recovery/biomedical-treatment/ – biomedical treatments

Methyl-B12: A Treatment for ASD with Methylation Issues

https://www.autismspeaks.org/related-services/equine-therapy – horse therapy

http://www.visiontherapystories.org/eye_tracking_disorders.html – vision therapy

http://www.interactivemetronome.com/

http://craniosacralhealing.com/autism.shtml (Cranio Sacral Therapy)

http://www.brainbalancecenters.com/

http://www.moveforwardpt.com/SymptomsConditionsDetail.aspx?cid=29dfec56-f6ff-4609-a92b-8626c9e544c0 – Physical therapy

http://www.aota.org/About-Occupational-Therapy.aspx (explaination of occupational therapy)

https://www.verywell.com/speech-therapy-for-autism-the-basics-260577 (speech therapy explained)…

https://www.understood.org/en/learning-attention-issues/treatments-approaches/alternative-therapies/sensory-integration-therapy-what-it-is-and-how-it-works

http://spdfoundation.net/about-sensory-processing-disorder

http://www.autismweb.com/floortime.htm

http://www.playtherapy.org/playhowdoestpwork.html

http://www.crisisprevention.com/Resources/Knowledge-Base/Autism-Training (crisis pervention)

http://www.fraser.org/Our-Services/Autism-Children/Parent-Child-Interaction-Therapy (describes PCTI therapy, parent/child therapy).

About PCIT

http://arttherapy.org/ (art therapy)

http://blog.hear-our-voices.org/2012/03/07/6-reasons-to-try-aquatic-therapy-for-autism/ (article on water therapy and autism).

http://www.musictherapy.org/ (about music therapy)

http://www.nationalautismresources.com/autism-social-skills.html – (social skills groups description)

http://www.goodtherapy.org/learn-about-therapy/issues/eating-disorders (eating therapy resources)

http://www.iancommunity.org/ssc/feeding-problems-children-autism (article eating issues and autism)

http://my.clevelandclinic.org/childrens-hospital/specialties-services/therapy-rehab/feeding-disorders (common in children with developmental delays)

http://pediatricresources.org/developmental.html (developmental therapy/cognitive)

http://www.healthline.com/health/behavioral-therapy (behavioral therapy described)

 

Home

 

 

ABA Therapy:

 

https://www.verywell.com/rethink-autism-aba-website-overview-260021

http://training.behaviorfrontiers.com/online-training.php

http://www.autismabacurriculum.com/programs

https://www.skillsforautism.com/

 

 

http://www.appliedbehavioralstrategies.com/what-is-aba.html

http://www.educateautism.com/applied-behaviour-analysis/visual-analysis-of-aba-data.html

http://www.appliedbehavioralstrategies.com/reinforcement-101.html

 

Down Syndrome:

http://www.ndss.org/

http://www.ndss.org/buddy-walk/

 

 

 

Type1 Diabetes:

https://www.jdrf.ca/

http://www.diabetes.org/diabetes-basics/type-1/?referrer=http://r.search.yahoo.com/_ylt=A0LEVrYIC0NXSkcAvaJjmolQ;_ylu=X3oDMTE0cXBucW1zBHNlYwNzcgRwb3MDMQRjb2xvA2JmMQR2dGlkA0ZGVUkzQzJfMQ–/RV=2/RE=1464040329/RO=10/RU=http%3a%2f%2fwww.diabetes.org%2fdiabetes-basics%2ftype-1%2f/RK=0/RS=rkXYFzDs5IgCnaZY1E1Cof7lpOM-

Home

 

 

 

 

 

 

 

 

 

http://www.healthline.com/diabetesmine/diabetes-ninja-app-gamification (game to manage diabetes for children)… ios & android app

http://appcircus.com/apps/dialog (same or similar to above)…

More Type 1 Diabetes Games:

Type 1 diabetes games – T1

Educational Games for Your Classroom Visit

https://www.brainpop.com/games/thediabeticdoggame/

http://grandmasandy.org/ (precious site full of resources)

Counting Carbohydrates

http://www.pumpwearinc.com/pumpshop/index.php?l=product_list&c=25

http://www.mykpp.com/

Diabetic Organizer with cool pack

Tape for fastening pumps and CGMs

http://www.positiveparentingspecialized.com/2016/05/random-type-1-diabetes-facts/

http://www.grifgrips.com/ – for keeping CGMs and Pumps on

http://www.type1strong.com/ – neat products to spread awareness

 

Mental Health:

http://www.suicidepreventionlifeline.org/ (suicide prevention)

http://www.helpguide.org/articles/depression/depression-treatment.htm (depression)

http://anxietynetwork.com/anxiety-help-and-support

http://www.helpguide.org/articles/bipolar-disorder/bipolar-support-and-self-help.htm

http://bravegirlsclub.com/

http://www.domesticviolence.org/

http://www.helpguide.org/articles/emotional-health/anger-management.htm

http://anger-issues.org/

http://www.focusonthefamily.com/

http://www.smalley.cc/ (for marriage support)

 

Bi-Polar Disorder:

http://www.aacap.org/AACAP/Families_and_Youth/Resource_Centers/Bipolar_Disorder_Resource_Center/Home.aspx

http://www.nimh.nih.gov/health/publications/bipolar-disorder-listing.shtml

http://www.healthyplace.com/bipolar-disorder/

How I Stayed Alive When My Brain Was Trying To Kill Me Book

Recovering From Childhood Problems Book

I Can’t Get Over It (Trauma Book)

https://www.nlm.nih.gov/medlineplus/bipolardisorder.html

http://www.helpguide.org/articles/bipolar-disorder/bipolar-disorder-treatment.htm

 

Homeschooling (Special Needs & Otherwise):

Extra Daily Visual Schedule Cards Free Printables

http://www.k12.com/

http://www.christianbook.com/page/homeschool/alpha-omega/horizons?utm_source=bing&utm_medium=cpc&utm_campaign=homeschool&utm_term=horizons%20curriculum&event=PPCSRC&p=1020037

Home

http://eps.schoolspecialty.com/products/literacy/phonics-word-study/explode-the-code/overview

http://eps.schoolspecialty.com/products/

https://www.hslda.org/strugglinglearner/sn_Klicka.asp

https://www.facebook.com/specialneedshomeschooling

http://www.home-school.com/groups/special.html

How to Choose Homeschool Curriculum for a Child with Special Needs

 

Organizing Your Homeschool in Small Spaces

Homeschool: Figuring Out Our Why

Tips on teaching highly distractible kids

Should I Homeschool My Kids? Thinking through the school decision.

Why I Don’t Stress Over Curriculum Anymore {and why you shouldn’t either!}

Essential Supplies for Homeschooling Every Subject

My Best Advice for Homeschooling A Child With Special Needs

Resources for Homeschooling And Special Needs

Local Helps Central Ohio:

http://www.themothershipinc.com/

 

Please help make this a stellar resource for everyone!  Please share this on your social media pages and please, feel free to share stuff that has helped in your life!  Together, we can make a difference.  Not one person should fall through the cracks. =)

 

jenn
jenn
I live in Columbus, Ohio USA, grown up here all my life. I love yoga, walking, riding bike, reading, bargain shopping, serving at church. Usually though, I'm napping in a doctor's office waiting area with one or two of the Fantastic Four Children. My passion is helping other families with extra health, behavioral, and learning issues like mine. Let's enjoy life... TOGETHER. It's more fun that way =)!

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Sharon A Mitchell
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For autism strategies and resources: https://www.facebook.com/pg/DrSharonAMitchell

For anxiety: http://www.anxietybc.com

Thanks for this wonderful thing you’re doing.

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